RESOURCES
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NC SIBS Community Facebook Group
Connect with siblings across the state in our NC SIBS Facebook group. Swap stories, support others, get advice, and find out about statewide sibling related events.
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Sibling Leadership Network
The Sibling Leadership Network (SLN) provides siblings of individuals with disabilities the information, support, and tools to advocate with their brothers and sisters and to promote the issues important to them and their entire families. Find a sibling chapter in your state.
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Sibling Support Project
The Sibling Support Project is a national effort dedicated to the life-long concerns of brothers and sisters of people who have special health, developmental, or mental health concerns.
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The Arc of NC
Provides resources, services, advocacy, and support to individuals with developmental disabilities and their families. 1.800.662.8706 | www.arcnc.org
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Future Planning with The Arc
The Arc of the U.S. has created a Center for Future Planning that offers insight, guidance and assistance for families and individuals at various stages of future planning. Learn about future planning, build your plan, find professionals, and see how others have planned.
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Sibshops
Sibshops are pedal-to-the-metal events where school-age brothers and sisters meet other sibs (usually for the first time), have fun, laugh, talk about the good and not-so good parts of having a sib with special needs, play some great games, learn something about the services their brothers and sister receive, and have some more fun. To find a Sibshop near you, visit HERE.
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Connect with Siblings Online
There are a number of online, interactive closed communities for siblings at different ages to connect with each other for information and peer support. Hosted by The Sibling Support Project, these groups serve as a front-line resource for sibs, by sibs! Siblings can look on Facebook to request to be added to a group.
SibTeen — for sibs who are teenagers
Sib20 — for siblings in their 20s
SibNet — for adult siblings
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First In Families of North Carolina (FIFNC)
Provides family support to individuals with disabilities and their families living in the community. FIFNC additionally offers Lifetime Connections offering customized supports and future planning assistance. 919.251.8368
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Family Support Network
Providing caring connections and caring to families and children with disabilities, mental health challenges, and special healthcare needs and the community since 1985. 1-800-852-0042 | www.fsnnc.org
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North Carolina Council on Developmental Disabilities
Mission is to ensure that people with developmental disabilities and their families participate in the design of and have access to culturally competent services and supports as well as other assistance opportunities which promote inclusive communities. 919.850.2901 | www.nccdd.org
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Disability Rights North Carolina (NC Protection & Advocacy Agency)
Provides advocacy and legal services at no charge for people with disabilities across North Carolina, as the state’s federally mandated protection and advocacy system. 1.877.235.4210 | https://disabilityrightsnc.org
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Local Management Entities/Managed Care Organizations (LME/MCO)
Community based services for people with intellectual/developmental disabilities are managed through a network of LME/ MCOs that oversee and manage local services. Find your local LME/MCO by visiting the site here. 1-800-662-7030
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The Division of Aging
The Division of Aging works to promote the independence and enhance the dignity of North Carolina's older adults, persons with disabilities and their families through a community based system of opportunities, services, benefits and protections. 919-855-3400
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Carolina Institute for Developmental Disabilities
North Carolina’s comprehensive center for a range of multidisciplinary clinical services, basic to applied research, clinical and research training and advocacy, with the goal of improving the lives of individuals with developmental disabilities and their families. 919-966-5171 | https://www.med.unc.edu/cidd
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Exceptional Children's Assistance Center (ECAC)
Committed to improving the lives and education of ALL children every day. 800-962-6817 | https://www.ecac-parentcenter.org
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AKALAKA
AKALAKA connects people caregiving for disabled family and friends with the peer-powered network needed to succeed at home and in our communities of choice. 704-916-9869 | www.akalaka.org
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Autism Grown Up
Creating and sharing resources and education to support Autistic individuals and their support network across the lifespan. www.autismgrownup.com
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NAMI North Carolina
NAMI North Carolina is an organization of families, friends, and individuals whose lives have been affected by mental illness. Together, we advocate for better lives for those individuals who have a mental illness. 919-788-0801 Helpline- 800-451-9682 or text 919-999-6527 http://www.naminc.org
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The Sibling Survival Guide
The Sibling Survival Guide: Indispensable Information for Brothers and Sisters of Adults with Disabilities. Edited by by Don Meyer and Emily Holl.
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Additional Resources
There are lots of great resources for siblings of all ages. Resources include articles and books, information on future planning, organizations, podcasts, resources for grieving siblings, and research. https://siblingsupport.org/resources